Jake Haendel suffered from terminal brain illness at just 36

Jake Haendel was found to have a fatal brain disease that caused locked-in syndrome, which prevented him from speaking or moving. There was “everything going for him” for Jake Haendel. He was working as a head executive chef in Boston after getting married when he was given a sad and transformative diagnosis. 

Jake Haendel’s Magical Healing

For ten months, the 36-year-old was in a coma-like state because physicians thought he was brain dead. He was first given six months to live and is now talking about his grueling but incredible years-long recuperation.

There was “everything going for him” for Jake Haendel. He was working as a head executive chef in Boston after getting married when he was given a sad and transformative diagnosis.

Jake Haendel became aware that his voice was becoming higher pitched than usual in May 2017. He first dismissed it, but on Memorial Day weekend, he decided to go to the ER after he began experiencing balance problems.

He was admitted and given intravenous fluids because the doctors thought he was experiencing symptoms similar to a stroke. Having visited the hospital numerous times, Haendel, now 36, anticipated being watched for a few hours before being sent home with antibiotics. He was correct.

Haendel’s mother, who passed away from breast cancer when he was 19, came to mind right away. He recalled the ten years he spent watching her battle the illness until she passed away, during which he experienced mental health issues and resorted to drug use as a coping mechanism.

Jake Haendel’s diagnosis

Following the announcement of Jake Haendel’s diagnosis, medical professionals took out a whiteboard and described the precise course of Haendel’s illness. Even with the use of assistive technology, he would not be able to walk within the first month. He would be confined to a wheelchair for the second month until his persistent pain made it intolerable. 

Haendel’s speech was completely gone by November. As his condition worsened, he was admitted to Massachusetts General Hospital’s neuro intensive care unit. He entered what the physicians thought was a coma at this point, which was in line with the disease’s normal course. The first time he heard the term “brain dead” was on December 1, 2017.

Jake Haendel’s diagnosis

It seemed as though Haendel was in a vegetative condition. Unbeknownst to his physicians, however, Jake Haendel’s illness set off locked-in syndrome, a rare and dangerous neurological condition that, according to the National Organization for Rare Disorders (NORD), results in total paralysis of all voluntary muscles save those controlling the eyes due to damage to the brain stem.

 

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